Latest news about the diagnosis, treatment and care of nodular prurigo http://www.nodular-prurigo.org.uk/news.php Copyright 2011, Nodular Prurigo International. All rights reserved http://blogs.law.harvard.edu/tech/rss en-gb Fri, 9 Mar 2012 11:00:05 +0000 rebecca@nodular-prurigo.org.uk Fri, 9 Mar 2012 10:58:58 +0000 0 1 2 3 4 5 60 info@nodular-prurigo.org.uk FeedForAll v2.0 (2.0.3.1) http://www.feedforall.com http://www.nodular-prurigo.org.uk/rss/logo.jpg http://www.nodular-prurigo.org.uk/news.php Nodular Prurigo UK 75 75 Advice on Himalayan Pink Salt http://www.nodular-prurigo.org.uk/altther.php 315706DD-ED7F-4CB6-B5D4-F5EE4F51E59A Fri, 9 Mar 2012 10:58:58 +0000 Concerns about people treating themselves with bleach baths has led to this warning. http://www.nodular-prurigo.org.uk/altther.php 2D3CF0C1-F3D4-49AC-960B-C1FBDA093ED8 Fri, 9 Mar 2012 10:57:25 +0000 NPI has acquired membership of the Dermatology Council for England (DCE). The DCE is a representative group which has been established to lobby for the best care for patients with dermatological conditions..... http://www.nodular-prurigo.org.uk/news.php#nw6 D8EB5649-6142-4107-82C0-1392CF022302 Thu, 8 Mar 2012 21:08:00 +0000 You may remember that I mentioned in a previous post (‘Buy Shares In Pharmaceuticals Now!‘) that I had started on a new regime of oral steroids..... http://www.nodular-prurigo.org.uk/blog/?p=188 6D62BCC2-22B2-4A69-A66D-EAF20FA518E9 Mon, 27 Feb 2012 21:01:16 +0000 A couple of weeks ago I put a poll in the NP-UK Facebook group asking the following question..... http://www.nodular-prurigo.org.uk/blog/?p=179 0EE2D045-7B62-40AD-AB93-5EAB8A8E6488 Fri, 24 Feb 2012 20:59:17 +0000 I have been thinking a lot about the posts on the NP-UK Facebook page and have a need to share some thoughts with you about the way in which Nodular Prurigo has not only changed my life...... http://www.nodular-prurigo.org.uk/blog/?p=169 3617F2FA-7C79-4742-81E3-C0EA1638A07A Tue, 14 Feb 2012 18:10:52 +0000 Well it’s been almost 4 weeks since I started taken Prednisolone daily for an extended period and I thought I should bring you up to date with progress..... http://www.nodular-prurigo.org.uk/blog/?p=161 CB0DD32D-FBE6-4320-8C5A-8A5C73A4E23D Thu, 2 Feb 2012 18:09:57 +0000 I have added a new page to this blog (Michael) because I feel very strongly about an issue which has implications for my own life. I do this with no apology. http://www.nodular-prurigo.org.uk/blog/?p=156 4CEF69C4-FD52-4650-854F-5FD514A8027C Sun, 29 Jan 2012 18:08:44 +0000 Can I thank everyone who signed my petition against the Aardman Animation film ‘The Pirates: Band of Misfits’. It has been announced that Aardman are to remove the scenes which were discriminatory to sufferers of leprosy before its release ..... http://www.nodular-prurigo.org.uk/blog/?p=107 F4E2B0F3-0C14-4F68-8D4D-D3FC00955BE2 Tue, 24 Jan 2012 18:07:03 +0000 Recently I went to IKEA to buy a new armchair. The old one had reached the point of no return, having been used by my two cats as a convenient scratching post! However I feel another visit to this superstore..... http://www.nodular-prurigo.org.uk/blog/?p=100 70BCC505-EBF7-47DA-98E5-5398D16FBB8E Fri, 13 Jan 2012 18:05:18 +0000 One of the major downsides to my NP has been on-going sleep disturbance (due to itching and the inevitable scratching) and the complete wrecking of my sleep-wake cycle. With the luxury of retirement this ..... http://www.nodular-prurigo.org.uk/blog/?p=87 5982CDA6-C964-4FA0-BB36-470935564000 Tue, 10 Jan 2012 18:03:27 +0000 Here is just a little bit of fun for the Christmas Season. Call me cynical or what!!! http://www.nodular-prurigo.org.uk/blog/?p=85 8E428B8F-DBD8-4AF4-A0A0-188570134AF1 Thu, 22 Dec 2011 18:02:00 +0000 Well Will Shakespeare, I have a method of enhancing your hope - take Gabapentin! It seems that my metabolism is such that all I did for the first week of taking this drug was sleep. By the end of the week I had come to the conclusion..... http://www.nodular-prurigo.org.uk/blog/?p=76 F1CEF4BE-1EB0-4B72-81B0-7B7062026A4A Mon, 19 Dec 2011 18:00:27 +0000 Yesterday I went to see my consultant dermatologist. I had to apologise for not going to the previous two appointments. As I explained earlier this year I reached a point of disillusionment with the whole treatment process..... http://www.nodular-prurigo.org.uk/blog/?p=64 D8B3980C-13B9-4627-A8F4-6D9638DE3FFC Wed, 7 Dec 2011 17:59:18 +0000 It’s been a long time since I added an entry to this blog. The year seems to have flown by, a function of getting older I think. My NP still plagues me and I have had to have a couple of periods on steroids to calm the whole thing down..... http://www.nodular-prurigo.org.uk/blog/?p=48 DC094025-0DA8-4468-BB72-E2BE95D928BF Mon, 28 Nov 2011 17:58:03 +0000 Since I last posted on this site in March, things have not been good at all. I became more and more isolated in my life and the night time life that I had started to inhabit became a Fait accomplit..... http://www.nodular-prurigo.org.uk/blog/?p=44 E942D889-D155-4630-B0C2-97ACF578B0A1 Thu, 26 May 2011 17:56:57 +0000 Been too fed up to update this blog in the past three months. My last appointment with my dermatologist in January resulted in the discontinuation of the CellCept and Prednisolone as I just wanted a period ..... http://www.nodular-prurigo.org.uk/blog/?p=41 45909293-1917-4750-8835-ED4A44C08583 Sat, 12 Mar 2011 17:55:44 +0000 Since my last update in September 2010 not a lot has changed with my NP. In November I had the CellCept ( Mycophenolate Mofetil) increased to 1500mg twice a day and the Prednisolone reduced to 10mg daily..... http://www.nodular-prurigo.org.uk/blog/?p=38 D01DA12F-4B27-43F9-9AEF-9898BE3D42F7 Sat, 1 Jan 2011 17:54:33 +0000 Another month goes by and not a huge amount of change since I started on Mycophenolate Mofetil. Having seen my consultant today he decided to increase the dose to 100mg. twice a day and continue the prednisolone at 15mg. daily..... http://www.nodular-prurigo.org.uk/blog/?p=35 F272F192-3DC3-47B5-93AF-1C9E3F1D7C79 Mon, 13 Sep 2010 17:53:21 +0000 Have been on Prednisolone for almost 9 weeks now and my symptoms continue to lessen. As you can see from the images below many of the lesions have healed and the reduction in itchyness..... http://www.nodular-prurigo.org.uk/blog/?p=27 5FDDC0A0-E063-4860-880C-B30DA4EC55D5 Thu, 22 Jul 2010 17:51:54 +0000 Saw my consultant again today to evaluate the progress of the Prednisolone I have been taking over the past 8 weeks. Although as I indicated in my previous entry the prednisolone had done wonders in reducing the inflammation..... http://www.nodular-prurigo.org.uk/blog/?p=30 481DE170-DD2D-4114-8D5E-A0BAB0816145 Wed, 16 Jun 2010 17:50:16 +0000 So I have had 4 weeks of Prednisolone on a reducing dose from 40mg down to 10mg and I am very happy. Some of the nodules have completely healed, although all have become more discrete with a hard scaly top..... http://www.nodular-prurigo.org.uk/blog/?p=24 AE97D0AC-AB9D-4DED-BB78-88904CBCB1DC Mon, 21 Jun 2010 17:48:44 +0000 Saw my consultant today and discussed the failure of the Thalidomide. As a way of giving some respite he has prescribed Prednisolone on a reducing dose from 40mg to 10mg over 4 weeks..... http://www.nodular-prurigo.org.uk/blog/?p=22 785957F3-E823-414E-A6AD-828BD6BC1BF1 Mon, 24 May 2010 17:47:23 +0000 This condition is hell! For the past few days after stopping the thalidomide, I have become increasingly depressed. Partly the disappointment of not getting any benefit from the drug..... http://www.nodular-prurigo.org.uk/blog/?p=19 DA25C565-0B23-4811-B8A3-87A6415B8F73 Thu, 13 May 2010 17:45:59 +0000 OK I accepted that there were risks with taking Thalidomide, but what I hadn’t foreseen were the severity of the side-effects for me, and I must stress for me as others will have different experiences..... http://www.nodular-prurigo.org.uk/blog/?p=12 8DDDA0C0-B48E-495B-B620-083A1A2D921C Mon, 10 May 2010 17:44:12 +0000 As the founder of this blog I feel that it is incumbent on me to declare on the following pages where I am coming from and my experience of nodular prurigo (NP)..... http://www.nodular-prurigo.org.uk/blog/?p=7 ED595BB4-9CC2-4B60-86F6-2A2CB8D206DD Tue, 16 Mar 2010 17:42:13 +0000 Rebecca's blog 'The Skin & I' has been moved to a separate Wordpress implementation. http://www.nodular-prurigo.org.uk/blog 6CF5A08F-D203-4D2E-B436-CFE32EDC7573 Tue, 29 Nov 2011 23:39:04 +0000 Update to Rebecca's blog, 'The Skin & I' http://www.nodular-prurigo.org.uk#23 52A83010-E673-4953-BE4D-A347FB4BB84F Thu, 16 Sep 2010 23:04:25 +0100 A gallery has been added to the website. This has images of nodular prurigo from subscribers to the website. http://www.nodular-prurigo.org.uk/gallery.php CED7D7A3-3B00-4884-9E3F-9F42B47724BF Tue, 31 Aug 2010 13:51:53 +0100 Update to Rebecca's blog, 'The Skin & I' http://www.nodular-prurigo.org.uk/news.php#nw5 56771BC2-CD10-4A4B-90B1-8941BB5A0AEF Mon, 16 Aug 2010 20:00:00 +0100 A treatment survey of nodular prurigo has been added to the website http://www.nodular-prurigo.org.uk/news.php#4 F1C749C7-6298-46AD-B27E-29BE823256C6 Fri, 23 Jul 2010 10:07:21 +0100 Announcement about NP UK joining the UK Dermatology Clinical Trials Network http://www.nodular-prurigo.org.uk/news.php#nw3 D5C2B4A5-C856-434B-9551-16DFF4BCB383 Thu, 22 Jul 2010 14:33:04 +0100 Announcement on the availability of an online version of the DLQI http://www.nodular-prurigo.org.uk/news.php#nw2 970910B3-6B39-422B-B67A-C24D0308810F Fri, 16 Jul 2010 17:21:55 +0100 Nodular Prurigo takes part in the annual conference and exhibition of the British Association of Dermatologists, Manchester, July 2010 http://www.nodular-prurigo.org.uk/news.php#nw1 5480E80E-3BE6-4F0A-8E93-4286559ADD5B Thu, 8 Jul 2010 20:17:53 +0100